Meet Our Family
About Jaymesun and Mom
Hi, I’m Ashley, Jaymesun’s mom. Jaymesun was born on April 07, 2010. His life has been a challenge since the moment he enter this world. He spent the first 11 days in NICU for double pneumonia and half way through developed and survived septic. After surviving the NICU, I developed an Infected duck and had to stop pumping milk and move to formula. As soon as Jaymesun started formula he started to projectile vomit, so we ended up in the hospital for about 2 weeks at All Children‘s seeing all sorts of specialists. which has lead us down many roads to many places and we still don’t have a complete diagnose. As of 2023 Jaymesun medical issues are deaf, level 3 autism, unknown genetic disorder, unknown luekodystrophy, pica, sensory issues, and 48 mini seizures a day. When I got pregnant with Jaymesun I was in school, one semester away from my A.A. degree. I found a way to finish my A.A. degree and tried hard to get my B.A. in microbiology. I was unable to do that due to Jaymesun’s needs and sickness. I have given up on becoming a scientist one day but glad I learned all I need to better raise Jaymesun. We have learned a lot along the way, made mistake, wish we could of done things different, found things we wish we found sooner and wanted to share with the world what we learned along the way.
What’s this page for?
I created this website as a place for other parents, family, love ones, teachers, friends, and anyone learning about what it’s like to be completely deaf and severely autisti. This is a space to share what we have learned, things we got, issues to address, and my thoughts and opinions on the secluded world my son and I live in. I hope it helps at least one person’s life be easier than ours was and is navigating through what is known as a special needs life and affairs.
Jaymesun’s Hobbies
Jaymesun loves to climb. He very good at it. He also loves gymnastic. His favorite part is the monkey bars. He is the only person I know who can do 5 chin-ups with his fingers tips only while holding each one for at leas t 5 seconds each ending with an upside down half flip over and back, all on his finger tips. Not only does he have a six pack on his abs he also have them on his back from his hours of climbing and hanging.